I went to London on Tuesday in a state of turmoil, as upon closer analysis of the letter written upholding my appeal allowing me treatment for Anti GAD associated Progressive Cerebella Ataxia stated one course of treatment only…
I was half expecting GG to say that one course would be a waste of time, but his interpretation is that one course equals four week long sessions. So we are back in business.
He also stated that current patient progress on this therapy was “excellent” and whilst I will not get back to normal, he is expectant of a “significant” level of recovery.
But until I am in that hospital bed in Whitechapel with the drip in place I won’t get carried away.
If the will power of friends and family were a factor in my chances, then I have a better opportunity than every patient in the NHS combined of getting out of this.