Having slagged off Victim Lit in all its sickening guises over the years, here is my contribution…
My life changing treatment at the Royal London Hospital for Cerebella Ataxia, which I had to fight tooth and nail for, and only got through the direct intervention of health Secretary Alan Johnson worked like a dream.
I left my wheelchair behind in September, and didn’t look back.
Independence, being able to cook and do the housework, taking Conor out on my own… Like a pig in shit.
Although I knew I’d never lead a “normal” and full life again, at least I had a life and was determined to make the most of it.
Finally, just finally something had gone my way after, let’s face it a bloody bad trot of luck throughout my life, going back to 1987.
But it all had to be too good to be true…
My body can’t take anymore of the treatment and reacted with a sickening development, meningitis as the lining of my brain rejected the anti bodies that are meant to help me.
I was very ill and to cap it all, the nursing staff were just vile. There is so much I could say on this issue, it would take all day, but suffice to say when your body is racked with pain, you are vomiting bile, your head feels like it’s about to explode and you’ve waited FIVE HOURS to see a doctor (I am an in patient), to be told to “calm down” just defies any rational belief.
Even then it was a further hour before the nurse could be bothered to get the necessary drips up and running in an attempt to alleviate this chronic reaction.
The Prof. says there are alternatives, so no need to panic yet, but it’s a massive setback.
But, the initial cycles where the treatment did work have bought me time. Summat will turn up.
I have had terrible tragedy touch my life, and when I heard this song it made me cry a river, but then I made a list in my head of the people who’ve helped me and what a lucky bloke I really am.
And that’s not counting my wonderful wife and son.
I’m sure I missed people out. Sorry. But it goes to prove luck and good fortune have many guises, you just need to look in the right place. And the video helps put stuff into it’s real perspective….
Mairin Power, Donagh O’Shaughnessy,
Tara Shaw, Nic Hoyle
Gavin Giovannoni, Mike Jones
Belinda Allen, Padraig Power
Ian Skitt, Simon Birch
Howard Goss, Lesley Flatt
Catherine Gallagher, Ann Marron
Eileen Cusack, Joan Murphy
Denis O’Shaughnessy, David Wall
Richard Robinson, Pete Crawford
Mark Murray, Andy Hodgson
James Murray, Andy Hill
Cara Jennison, Cathy Hunt
Michelle Scott, Mark Paterson
Steve Noakes, Claire Quigley
Gemma Applegarth, Julie Driver
Sarah Soane, Kieran Cusack
Maura Power, Joan Foley
Adrian Marron, Rosie Scott
Sarah Brownell, Louis Byron
James Walsh, Gordon Tait
Sue Atkinson, Chris Rees
Colm Power, Ian Mellor
Joe Murphy, Niall Cusack
Lucy Harrison, Nicky Cowie
Phil Barlow, Sharon Burton
Ray Rumkee, Stuart Flatt
Treasa O’ Shaughnessy, Neal Purvis