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Living With Cerebella Ataxia

Hull Primary Care Trust’s Lies on Blood Clot Treatment

I read with interest online and then in today’s paper about the NHS Trust having to pay out £300 K in compensation regarding the sad and untimely death or Mr. Mark Bonehill in 2008 at Hull Royal Infirmary following a series of blunders and misdiagnosis.

http://www.thisishullandeastriding.co.uk/Trust-pays-300k-widow-blood-clot-killed-husband/story-13089217-detail/story.html

I was especially interested in CEO Phil Morley’s quote; “Since this case occurred in 2008 the trust has implemented the National Institute for Clinical Excellence (Nice) recommendations across the organisation and monitors that all in-patients have undergone an assessment as part of the admission process.

“A full education programme is being launched across the organisation to ensure all clinical staff are fully aware of the Nice guidance and to ensure we are able to respond rapidly to introduce new treatments and practice.”

Bollocks.

I was flabbergasted by this response given what happened to me in November.  In December I wrote some stuff about the abysmal way in which my Dad’s final days were handled by the Trust. I have since been working with Alan Johnson to get some answers and Mr. Morley sent us letters full of excuses and with no real answers. Then this happened….. 

On Thursday 9th December I went to A and E at Hull Royal with severe breathlessness and pain in my chest. I told them about my (many!) conditions and that I had been in hospital for seven days having been discharged that Monday. The Doctor rather bizarrely told me I had possible signs of heart failure and I should go home and get blood pressure tablets from my GP. It was a very surreal consultation. (He reminded me of the Doctor on the Simpsons). I felt like complete crap but went along with it due to just wanting to sleep. I went to my GP on the Friday and was given said tablets for blood pressure and to be fair to my GP it was high and I thought that must be the cause. 

By Sunday however I was so bad that Cath had to call an ambulance that evening. They took me to A and E, put me on a trolley and left me in a corridor in the AAU for fourteen hours. As I had been rushed in I had no medication (I am a diabetic and rely on morphine for pain management) and no wheelchair. I kept asking for help without success until eventually I had to kick a table over to get someone to take me to the loo! Luckily the Doctor doing the morning round realised there was something seriously amiss and I was rushed into a CT scanner without even having to wait in the queue. Clots in the lung were found and they took immediate action to break them up and I was looked after really well on Ward One for the next week. 

The following day two people came to see me and took copious notes about my experience. I didn’t ask to see them, and wondered why they were there but heard nothing subsequently. 

I thought nothing more about it until I went to see my regular neurology guy, Gavin Giovannoni, in London. Not only was he appalled at what had happened initially but he was gob smacked that there has been absolutely no follow up from HRI and that my GP was dealing with the day to day aftermath. He immediately got me in with a consultant specialist in London who again could not conceive a) how I had been totally let down warning me I was lucky to have got through it and b) there was no after care. 

Their professional experience and comments make Phil Morley’s words seem supremely arrogant, full of complacency and hubris and I don’t want people to think that everything is now sorted. It isn’t and to my mind (when you take into account what happened to my Dad) there is a culture of blame and not taking responsibility. The sad thing is that the hard work and dedication of the front line staff is being undermined by weak and ineffective management.

Mr Morley’s words in today’s Hull Daily Mail are mealy mouthed and have spurred me on to doing something about it. Who knows what else goes on in that hospital?

 


 

 

 

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About dermotrathbone

Writer and co author "Through Red Lenses". Activist Unite the Union, Save Our NHS Hull. Fan of Yorkshire County Cricket Club, Hull FC, Munster and Ireland Rugby. Views are mine alone and may not reflect the organisations concerned.

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